Events and subjects I talk about
14-15 November 2019: European Neonatal Ethics Conference 2019
I’ll be talking about getting a genetic diagnosis for a baby in the NICU.
12 December 2019: John Radcliffe Hospital, Oxford
I’ll be reading from The First Breath and talking about the book to the neonatal team.
30 January 2020: South West Neonatal Network Professionals Skills and Education Conference
I’ll be speaking about the real impact of neonatal care at this skills and training conference for all neonatal professionals across the south west and nationally.
11 March 2020: National Disease Registration training event, London
I’ll be speaking to staff of the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS).
4 April 2020: Noonan Syndrome Association Families Day, Litchfield
I’ll be talking about my family’s experience with Noonan syndrome.
23 – 25 July 2020: Noonan Syndrome Foundation Family Conference, Washington DC
I’ll be talking about my family’s experience with Noonan syndrome and my book. [TBC]
Subjects explored in The First Breath which I am happy to speak about (in no particular order):
- Having a child with a disability / special needs
- Mothers’ emotions in NICU / foetal medicine unit and maternal mental health, especially mothers of disabled or sick children
- The long-term impact of neonatal care on the child and family / life after NICU / post traumatic stress and the neurodevelopmental impact on the child
- Being a foetal medicine patient / having a high-risk pregnancy
- The neonatal unit experience
- Having a child with a genetic condition
- Parents’ experience of paediatric surgery
- Having a child with a congenital heart defect / the experience of open heart surgery for families
- The history of foetal, neonatal and paediatric medicine
- The patient / doctor relationship
- The female patient’s experience of medicine / feminism and motherhood / feminism in the NICU
- Noonan syndrome and the rasopathies
- Neurodevelopment: autism, ADHD, dyspraxia, special needs of the NICU graduate