11 March 2020: National Disease Registration training event, London
I’ll be speaking to staff of the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS).
4 April 2020: Noonan Syndrome Association Families Day, Litchfield
I’ll be talking about my family’s experience with Noonan syndrome.
At this conference run by the British Maternal & Fetal Medicine Society, the British Association of Perinatal Medicine and The Neonatal Society, I’m honoured to be speaking about the neonatal experience for parents.
23 – 25 July 2020: Noonan Syndrome Foundation Family Conference, Washington DC
I’ll be talking about my family’s experience with Noonan syndrome and my book. [TBC]
Subjects explored in The First Breath which I am happy to speak about (in no particular order):
- Having a child with a disability / special needs
- Mothers’ emotions in NICU / foetal medicine unit and maternal mental health, especially mothers of disabled or sick children
- The long-term impact of neonatal care on the child and family / life after NICU / post traumatic stress and the neurodevelopmental impact on the child
- Being a foetal medicine patient / having a high-risk pregnancy
- The neonatal unit experience
- Having a child with a genetic condition, and the diagnosis experience
- Parents’ experience of paediatric surgery
- Having a child with a congenital heart defect / the experience of open heart surgery for families
- The history of foetal, neonatal and paediatric medicine
- The patient / doctor relationship
- The female patient’s experience of medicine / feminism and motherhood / feminism in the NICU
- Noonan syndrome and the rasopathies
- Neurodevelopment: autism, ADHD, dyspraxia, special needs of the NICU graduate